Cure4Lupus.org
For Lupus Fighters, By Lupus Fighters.
Promoting Lupus
Awareness and
Research to Find a Cure.
Providing
Information,
Support, &
Lupus Awareness Products.
Place an order online or by phone 402-201-9945, 9am to Midnight
Lupus Support ServicesThere are many resources for Lupus support, here are some of them. LFA Local Lupus Line, most Lupus Foundation of America chapters offer phone support for constituents. You can find the LFA chapter nearest you as well as contact information here: LFA Chapter List LupusLine, offered by Hospital for Special Surgery and made possible through funding by Rheuminations, Inc., reaches out to the communities it seeks to serve in cooperation with the S.L.E. Lupus Foundation. Telephone peer counseling staffed by trained volunteers who have lupus. Call 212.606.1952 or 866.375.1427. Charla de Lupus (Lupus Chat) is a peer health education program staffed by trained volunteers living with lupus with a particular emphasis on Spanish-speaking communities. The program is available on-site at several New York City area hospitals, as well as by phone. In addition, the program offers Teen and Parent Lupus Chat Groups at hospital sites in NYC. The program is offered by Hospital for Special Surgery, and made possible through funding by Rheuminations, Inc. Contact the Hospital for Special Surgery at 212.606.1958 or 866.812.4494 LANtern (Lupus Asian Network) Program, offered by Hospital for Special Surgery and made possible through funding by Rheuminations, Inc., reaches out to the communities it seeks to serve in cooperation with the S.L.E. Lupus Foundation, Charles B. Wang Community Health Center, Hospital for Joint Diseases, Chinese Community Partnership for Health at New York Downtown Hospital, and the Center for the Study of Asian American Health at NYU School of Medicine. This program offers support, education, and outreach to the Chinese community. Trained billingual (Cantonese and Mandarin-speaking) peer counselors, who also have lupus, are available by telephone. Contact the Hospital for Special Surgery at 212.774.2508 or 866.505.2253 Online Support Groups - Lupus Mid-Atlantic offers two: Support for lupus patients, and Support for family members of lupus patients. It is possible to receive the support you need without leaving your home. Online groups allow for flexibility, anonymity, and a unique type of group experience. For more information or to register, call 800-777-0934 or email: Lupus Colorado Telephone Support -
Lupus New England Telephone Support - Central Massachusetts Area Karen Kaufman, MS, CCN 508-347-0011 Amy Harned 508-943-6975 Merrimack Valley Area Kathy Souza 978-392-1232 Framingham and West Suburban Area Laurie Adelstein, MS, OTR/L 508-653-9053 Cure4Lupus.org does not necessarily endorse any of the sources listed on this page, nor does it verify information contained in them. Always use caution when getting information about Lupus and related topics. |
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