- The Ad Council's survey found that only 18 percent of women are personally concerned about lupus. The majority of respondents expressed concern about other health-related conditions, including cancer (67%), depression (61%), high blood pressure (58%), diabetes (57%) and arthritis (52%). Furthermore, approximately 29% could not correctly define lupus as an autoimmune disease, and 31% were not aware that women of childbearing age are most at risk.
- 50% of Lupus patients see at least 3 doctors, over at least 4 years before being diagnosed.
- In a nationwide poll of 1,000 adults conducted for the LFA, 61% said they knew little to nothing about Lupus.
- 1.5 million Americans suffer from Lupus that is 1 out of every 200 Americans.
- Estimates say 16,000 Americans develop Lupus each year.
- 90% of those with lupus are women.
- Lupus affects African Americans three times more commonly than Caucasians. Asians, Hispanics, and Native Americans are also more commonly affected.
- 80% of those with Lupus develop it between the ages of 15-45.
- Discoid Lupus accounts for about 10% of Lupus cases.
- Click to view the prevalence of Lupus by country.
- About 5% of the children born to individuals with Lupus will develop the illness.
- 20% of people with Lupus will have a close relative (parent or sibling) who already has Lupus or may develop Lupus.
- Thousands of Americans die of Lupus each year.
- Only 50% of lupus patients lived 4 years after diagnosis in the 1950s. Currently 80-90% of Lupus patients survive 10 years or more after diagnosis.
- About 15% of arthritis deaths are from SLE.
- Almost 37% of SLE deaths are among people between 15 and 44.
- Lupus deaths are five times higher for women than men.
- Lupus deaths are three times higher for blacks than whites.
- Mortality Ratios in the US for Systemic Lupus according to a Connecticut Health Center Study:
- No new treatment has been approved by the FDA for Lupus in over 50 years.
- We still do not know what causes Lupus.
- Economic Impact
- Two of three Lupus patients reported a complete or partial loss of their income because they no longer are able to work fulltime due to complications of lupus.
- One in three patients have been temporarily disabled by the disease, and one in four currently receive disability payments.
- According to a Lupus Foundation of America membership survey, one in four patients receive their health care through a government-sponsored program, such as Medicare or Medicaid.
- Lupus costs the nation over $100 billion a year in direct and indirect medical costs
- Lupus patients spend an average of $13,735 - $27,531 on medical care compared to $7,794 - $9,788 spent by those without Lupus. The cost rose to $29,034 - $62,651 if the Lupus patient has nephritis.
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