SLE Genetic Studies

Table of Contents

There are genetic studies that are being conducted in this country for SLE. You can participate in these studies no matter where you live in the US. All you have to do is fill out some paperwork and they send you a kit to take to your local lab and have some blood drawn. These studies are totally free to participate in, they pay for all lab work and postage, some even pay you a small fee for your time.

Sisters of SLE Study - Women who were diagnosed with lupus between the ages of 10 and 40 are invited to join the study if they have a sister or sisters (also between the ages of 10 and 45) without a diagnosis of lupus. Half-sisters are welcome to join the SisSLE study as well. For more information call Bonnie Gonzales, RN, or Sally Kaplan, RN, at 877-698-9467 or email SisSLE@nshs.edu or visit the website http://www.SisSLE.org.

University of Minnesota - They are studying the genetics of SLE. They are trying to identify and understand the genetic factors that contribute to SLE. For more info about the study visit: http://www.lupusstudy.org/index.php to enroll in the study visit: http://www.lupusstudy.org/contact.php.

The Lupus Multiplex Registry and Repository (LMRR) - This is a long term research project sponsored by NIAMS a branch of the National Institutes of Health (NIH). The information collected is used to:

• Identify the genes involved in the development of lupus,
• Determine these genes' roles in disease activity,
• Study various aspects of the disease (such as autoantibodies),
• Develop better treatments for patients who suffer from this serious illness &
• One day, find a cure or method of disease prevention.

This study pays a small fee for your time, I think it was $30. To read more about this research project visit: http://lupus.omrf.org/ to fill out the online interview visit: https://lupus.omrf.org/lara/. Outside the US contact lupus-recruiters@lupus.omrf.org for more info.

UCLA - This study is working towards identifying risk factors or genes that may contribute to the development of Systemic Lupus Erythematosus. For more information about this study visit: http://www.lupus.med.ucla.edu/study.htm and to enroll, email: Tsaolab@mednet.ucla.edu or call: 800-273-0730.

NIEHS Clinical Study - Can be conducted in your doctor's office. Requires yearly blood work for 5 years.

 

We hope some of you will consider participation in these studies. The more we learn about what causes Lupus the faster we can find a cure! Click here to see more about Lupus clinical trials and Online Studies.