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Hi my name is Brenda Anderson, I am from northern Wisconsin. I was diagnosed with SLE eight years ago. This is a poem I wrote while I was having a major Lupus flare up.  I just want others to feel the desperation this illness makes us feel.  Thanks

 

“Lupus” The Monster In Me

By Brenda Anderson

                                                                                    

I wake every morning

Feeling achy and grim

Inflammation and soreness

In every limb

 

I struggle to get

Myself out of bed

I try to be thankful

That I am not dead

 

Although sometimes

I wish it were true

This agony and pain

I wouldn’t have to go through

 

To others I look

Like nothing is wrong

Inside my heart I cry

A gruesome song

 

I try not to think about

How awful I feel

But I wonder each day

How I am going to deal

 

With this pain and suffering

That is so intense

I feel like I’m backed up

Against a barbwire fence

 

How will I manage

How will I cope

Doctors just keep prescribing

More and more dope

 

I’ve learned to deal

With the physical pain

But now this monster

Is affecting my brain

 

Sometimes I feel

I’m falling further behind

Sometime I feel

I am losing my mind

 

The things I once did

Have no meaning any more

All the fun and laughter

Has gone out the door.

 

Day by day

I manage to do my job

But for the rest of the night

I’m rather a snob

 

 

I don’t mean to be

This person filled with rage

It’s like I’m stuck,

Can’t get out of this cage

 

Each day comes something

A symptom, a clue

I don’t think there is anything

any doctor do

 

I don’t have a life

This disease is in control

It holds me deep within

This lonesome dark hole

 

Who have I become

What’s happened to me

Who is this monster

That I try so hard not to be

 

Perhaps some day

They’ll find a solution

Perhaps it will have been caused

By our world’s pollution

 

Whatever it is

Whatever it may be

I truly don’t like what

It’s done to me

 

My concentration is gone

My thinking has went

My memory is lost

My patience spent

                                                            

Will there ever be a time

I feel no pain?

Will I finally see sunshine

After all this miserable rain

 

Donate to Lupus Research

to help many more than just me

Help find a cure

For this monster that be.

 

 

 

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