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Cure4Lupus.org

 Toxic Treatments are not a Cure!!

 

Promoting Lupus Education, Awareness and Research. Providing Support, Lupus Awareness Products and Merchandise.  Be part of the cure!

 


 

 

 

 

 

 

 

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Top 15 Visited Pages

(August 28, 2008)

1.  Lupus Symptoms

2.  Malar Rash Pictures

3.  Discoid Lupus

4.  Celebrities & Lupus

5.  Lupus Products

6.  Subacute Cutaneous Lupus

7.  Lupus Diagnosis/Tests

8.  Lupus & Tattoos

9.  Lupus Jewelry

10. ANA Test

11. What is Lupus?

12. Lupus Headaches

13. Lupus Poetry & Humor

14. Lupus Awareness Clothing

15. Vasculitis Pictures

 

 

 

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People Magazine & Lupus

You can visit the magazine's website at: http://www.people.com/people/magazine/0,,,00.html

We have written the following email to the magazine to ask them to do an article about Lupus.  We encourage all of you to write to them as well.  You can tell them your story, give them Lupus information and stats and encourage them to cover this important topic. 

Here is the magazine's email: Editor@people.com

Dear People Magazine:

I am writing to you today to let you know about a disease that is killing and disabling thousands of Americans every year and millions more suffer from it while the FDA hasn't approved a new treatment in over 4 decades.  That disease is Lupus and it desperately needs the national attention your magazine can give! 

Several celebrities have spoken about the damage the disease has caused in their lives and the lives of their families.  Singer Seal battled Discoid Lupus as a child.  Top 20 American Idol finalist Leslie Hunt, America's Next Top Model season 2 contestant Mercedes Yvette, actress/model Pietra Thornton, actress/model Kelly Drury and Sharon Stone's sister Kelly Stone have all talked about their battles with Lupus.

Lupus affects an estimated 1.5 million Americans, 90% of them are women.  Lupus also affects African Americans 3 times more than Caucasians.   For such a common and potentially deadly disease it is dreadfully under publicized, misunderstood and lets just be honest, ignored.  This disease is often disabling and almost always life altering for not only the patient, but also for their families.  It has been over 40 years since the FDA has approved a new treatment for Lupus.  That is inexcusable when the current treatments can be just as debilitating as the disease itself. 

Almost everybody has heard of Lupus and even knows somebody who has it, but if you asked them what it is they wouldn't know, or they would tell you something vague or just plain false.  There are a lot of misconceptions out there. 

October is National Lupus Awareness Month and is just one example of a great time to include information about this disease.  We hope you will consider shedding some light on this disease and the effects it can have on both the patient and their family!  We will be asking our support network of Lupus patients and their families to let you know how much this story needs to be told as well.  You can read my personal story at: http://cure4lupus.org/kendras_story.htm  If you want to read more about Lupus you can visit our website at http://Cure4Lupus.org, The Lupus Foundation of America's website at Lupus.org or the Alliance for Lupus Research's website at LupusResearch.org. 

Kendra Isola

Webmaster@Cure4Lupus.org

 

 

  

 

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