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Toxic Treatments are not a Cure!!
Promoting Lupus Education, Awareness and Research. Providing Information, Support, Lupus Awareness Products and Merchandise. |
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Top 15 Visited Pages (October 24, 2008) 13. Lupus Headaches 15. What is Lupus?
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Hello! My name is Sophia Winters, I am 44 years old & I was diagnosed with Lupus in 1982. I was 19 & should have been at the top of my game but instead, I was near death! My regular doctor told my Mom that I was a hypochondriac. He FINALLY sent me to a rheumatologist who quickly diagnosed me…thank God or I would not be here today. He put me on mega doses of prednisone which helped initially. Soon I was down again. Ended up in the hospital for like 4 months with every vital organ failing & even had psychosis. By the grace of God, I made it through. I had osteonecrosis (sp?) in my knee from all the steroids but other than that, I came out good! I went into remission for a lot of years. The Lord blessed me with a child (usually women can not carry babies & if they do, the Lupus flares). I went into early menopause at 37 & I started getting symptoms. IT IS BACK! :( I have been fighting it for the last 6 years, I have been in & out of the hospital. I am not working right now as it is flared up. I have joint pain to the point where it is hard for me to get out of my recliner which is where I spend most of my time. My kidneys are involved & again, no drugs to control it. I am on 30mg of prednisone right now & it is not really phasing it. The doc says that he has tried everything & nothing has worked so I am STUCK!?!?!?!?!?! Left to this life??? NO WAY!!! There has got to be something……some more research would be nice! Some more awareness would be good!! I understand why 25 years ago nobody knew about it but now….this should not be! There was a walk done to raise awareness & money last weekend here in DSM IA but I didn’t know a thing about it! When they have breast cancer walks, EVERYONE knows about it but not for Lupus!!!! This is just not right! I am a person too who has a wonderful husband, a great daughter & a beautiful granddaughter who I would love to be NORMAL for! I want to see my girls get married etc but the way I feel & sometimes my mental state says I wont be around for long! Its sooo hard to stay positive when there seems to be no hope, to say, this is my life?????? This SUCKS!!!!!!!!!!! Its not worth living!!!! I will continue to fight because I am not ready to leave my family & friends, I THINK they still need me!! But really, at 44, my life SUCKS!!!! I know it could be worse but it could be better too!! I take a lot of vitamins which cost a fortune not to mention the cost of the drugs I take & medical expenses!! I am at a loss for what to do or think at this point!!!!! Please help raise awareness!! This is my history in a nutshell but would love the opportunity to elaborate if you are interested!! Sophia Winters
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