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For Lupus Fighters, By Lupus Fighters.
Promoting Lupus Education, Awareness and Research to Find a Cure for Lupus. Providing Information, Support, Lupus Awareness Products and Merchandise.
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Featured Product: Most Popular Pages 12. Lupus Treatments 14. ANA & Lupus
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It is a bit difficult to give too much direct
advice to newly diagnosed patients because Lupus can be so different
from one person to the next. Here are a few basic tips however that
are universal for all Lupus patients. 2. Get as much support as you can! You will need a network of support from family and friends as well as others experiencing the same difficulties. Your family and friends will need to be educated in order to understand even a little bit of what you are going through. This can be especially difficult, many times family and friends just do not understand what it is like for you. With loving intentions they can be insensitive, expect too much of you, and they can push too hard. Family members may think you are lazy, not trying hard enough, just don't want to do things, or just want attention. The best way to combat this is to do your best to inform and educate them and then just understand that they don't know what it is like unless they have dealt with something very similar. 3. Get doctors that you can communicate well
with. You will need a primary, a Rheumatologist and depending on what
organs are involved, perhaps a neurologist, cardiologist, dermatologist,
nephrologists, etc. Your primary can refer you to a Rheumatologist and
they will refer you to any other specialist you need. It is important
that you are comfortable and confident in your doctors. If you are not,
find another one. Ask lots of questions! Keep a list of questions to
take to doctor's visits with you. 9. Consider visiting a therapist/Psychiatrist. Depression and psychosis can both be actual symptoms of Lupus but much more commonly just the stresses and difficulties of dealing with chronic illness can cause depression and anxiety which worsen the actual symptoms. Having someone to talk to and perhaps medications can make a world of difference!
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