There are genetic studies that are being conducted
in this country for SLE. You can participate in these studies no matter where you
live in the US. All you
have to do is fill out some paperwork and they send you a kit to take to
your local lab and have some blood drawn. These studies are totally free
to participate in, they pay for all lab work and postage, some even pay
you a small fee for your time.
University of Minnesota - They are
studying the genetics of SLE. They are trying to identify and
understand the genetic factors that contribute to SLE. For more info
about the study visit:
http://www.lupusstudy.org/index.php to enroll in the study visit:
http://www.lupusstudy.org/contact.php.
The Lupus Multiplex Registry
and Repository (LMRR) - This is a long term research project sponsored
by NIAMS a branch of the National Institutes of Health (NIH). The
information collected is used to:
Identify the genes involved in the development of
lupus,
Determine these genes'
roles in disease activity,
Study various aspects of the disease (such as
autoantibodies),
Develop better treatment for patients who suffer from
this serious illness &
One day, find a cure or method of disease prevention.
This study pays a small fee for your time, I think it
was $30. To read more about this research project visit:
http://lupus.omrf.org/ to fill out the online interview visit:
https://lupus.omrf.org/lara/.
Outside the US contact
lupus-recruiters@lupus.omrf.org
for more info.
UCLA
- This study is working towards identifying risk factors or genes
that may contribute to the development of Systemic Lupus
Erythematosus. For more information about this study visit:
http://www.lupus.med.ucla.edu/study.htm and to enroll, email:
Tsaolab@mednet.ucla.edu
or call: 800-273-0730.
NIEHS
Clinical Study - Can be conducted in your doctor's office.
Requires yearly blood work for 5 years.
We hope some of you will consider participation in these
studies. The more we learn about what causes Lupus the faster we can
find a cure!
Click here to see more about Lupus clinical trials
and Online Studies.
